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While the bones might break, the spirits never will !!


How does it feel when bones are as fragile as glass ? Osteogenesis Imperfecta or commonly known as OI is a rare genetic disorder that is characterized by fragile bones. It is also known as the ‘Brittle Bones Disease’ or the ‘Glass Bone Disease’. The severity of OI can vary from mild to severe. The milder the condition is, fewer the fractures in the affected person’s life time. In severe cases it can involve hundreds of fractures that can occur without any apparent reason. Archana, was born with OI. Due to lack of awareness and education and support on Rare Diseases, decided to create OI foundation with like minded people. Even though she has OI since birth it has not stopped her from having a very normal, active and fulfilling lifestyle. Her life time dream has been to empower individuals with rare diseases so they too can have a productive lifestyle and contribute positively to the community. Archana founded a charitable trust Indian Osteogenesis Imperfecta Foundation (IOIF) to support people with Osteogenesis Imperfecta. The focus of the foundation is to empower individuals with OI by providing support to them, creating a network of Orthopedic Doctors and the other stakeholders. Prasad Kuppa and Dr.Prashanth Inna who joined IOIF are helping Archana to achieve the goals of Foundation..

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